Thursday, June 5, 2008


A film crew was here for the last 2 days filming us. They asked how dementia has affected our lives. Quite a bit, actually. My SO has had to cut back on her activities but she is still able to manage this family. In fact, she leaves Saturday morning to take our oldest to Nashville for a computing camp and our youngest for a Kendo practice. She's planned it and mapped it out. She still manages that.

We bought a Tomtom to help her. I'm still trying to figure out a way to claim that as a medical expense. If anybody else out there has managed that, let me know.

Anyway, it came in handy for getting the producer to the airport. It corrected my SO's route after a wrong turn and they made it just fine.

I know what's coming with this dementia. I'm not ready to give up yet. I was filmed saying that if one believe's in a God then one must ask why? Why this? Why her? Why the children? Why me? We haven't done anything to deserve this. There is no good answer and probably never will be.

This is an ugly, horrible disease. It robs the family of a partner, parent and loved one. It's awful. And I don't think that America is ready for what's about to happen to it. Medical care is inadequate at best. Research is underfunded. Something's got to give soon.

I hold out hope that a cure is just around the corner.

Lawd, I'm Tired

We put in a patio this weekend. I'm grateful for the help even though I wasn't ready. It's probably just as well because knowing that I had folks coming over to help motivated me to get up off my ass and get it done. The entire family helped plus a couple of friends, one of whom came from out of town.

It took us until 3 that afternoon to finish but we finished. Brick pavers. Not the big 16x16 but the regular sized brick. I think we laid about 600 of them. These are bricks that another friend gave us. All in all, it was a cheap patio. Cost me some sand, landscape timbers, pizza and a pork shoulder.

It was great and it looks great. Go to for pictures.